Jan. 29, 2007

3:30 P.M.

Sorry I haven't written or I guess I should say updated the blog sooner just not a lot to say, the medicine has made her more mellow, there has been times were she has acted up towards us but it has been a lot less now, she hasn't done much tho besides set in her chair, we have been trying to work with her as far as with her books and pointing to things but we are not getting much response from her tho. Its just really confusing to understand how to feel about all of it, it seems to be a never ending confusing steps as we go, the more we think it is getting better she goes just the opposite, or going from doing things to not doing them, I'm just so tired of wondering, how, why, WHEN. But I guess that will be in God's due time when he will answer everything for us. I am going to only report once a week from now on until things start changing more. Thank You to every one's continuous support and prayers. Thank you and God bless.

Jan. 24, 2007

7:00 P.M.

Well we made it to our last appointment just in time to make more doctors app. The Doctor we seen today gave her more medicine some she already had and just went up on the dosage and two new ones, I really think its to much medicine, but the doctor said we have to get the mood swings under control, because it is not good for her to be up and down like that. So he is hoping the medicine will even her out, to make her more calm and more aware of her surroundings. They took some blood work today it took six people to hold her down to get her to hold still long enough to get the vein, they had to stick her three times because she wouldn't hold still so they keep losing the veins, of course I can't sit still threw those needle sticks either. Ray unfortunately got the worst she bit him threw his coat, and still left a good mark. Stacey was pretty good threw all of it except she really wouldn't let the doctors examine her, she pretty well let them know who was running the show and it was her. But after we left she calmed down and back to her calm self at least until we went to go get the blood drawn. It was really weird but she wouldn't let me go today unusual from the last two days, I guess she knew I wanted this day to go good because it decided weather she would get to go to a day rehab. or not and maybe she thought I was going to leave her there. On that note we need to get her evaluated by someone that is in the field to make the decision, need to call tomorrow to set up the app. But with her still on the wild side I think we blew our chance for the day-rehab. but I guess a few more tests and few more doctors app. we will get our answer. The only thing I regret about all of this is with all the mood swings and the new changes we have lost the one thing I loved the most was her smiling, we have not been able to get her to smile for us or the camera for the past three weeks, but I guess it's only faze so hopefully it will come back. But that's all for now the picture is of Stacey tonight I made one last attempt to get her to smile but I didn't get one. So until Friday Thank You and God Bless.

Jan. 22, 2007

4:30 P.M. Sorry for not updating last night but my blog was upgraded and I forgot how to get in it. Well the last few days have been real nice she has been really calm again, I'm not for sure if it is because she is not getting sleep and she is just tired or if she is back in her good mood again, but I guess we will see. Two doctor's app. today and tomorrow and another Wednesday, hopefully we will get some answers on what going on and what to expect. Stacey has learned to roll over on her side and she also will do it when I ask her to, which is a very good thing for when we go and change her. Well that is it for tonight I will log back on Wednesday night to let everyone know how things went with the Doctors app. Thank You and God Bless.

LUCK ? I DON'T THINK SO !

LETS NOT ATTRIBUTE STACY'S PROGRESS TO LUCK, BUT GIVE PRAISE WHERE PRAISE IS DUE, ANSWERED PRAYERS !!! Stacey has been really agitated today, some friends came by this afternoon and she did not do very good with them not sure why, but it's just really hard to see her when she gets like this. I am really happy that she is making progress tho, its just these things she goes threw scares me, it's just not good for anyone to get that upset, mentally or physically. But hopefully Tuesday will give us better answers or medicine to level her out some. But that's it tonight it looks like it is going to be another long night with her so until Sunday. Thank You and God Bless.

Jan. 17, 2007

5:00 P.M. Well the last few days have been very strange yesterday she was basically calm, one of the teachers came yesterday and was reading to her, she stayed pretty calm until the end she started raising her voice, but she went back to being calm. We laid her down after a shower which went good also, but she woke up a couple ours later screaming, I tried to calm her down but she was not going for it. I'm not sure but I think she may be having bad dreams just how she wakes up and is just so upset, but I'm not sure. Today she has been really calm not even so much as a word out of her all day, she felt like she was running a fever earlier but she wasn't. Not sure how to take her being so quiet she acts like she doesn't feel good, but I just can't tell what's going on, this is the only thing I hate about all of this, I can't tell what's going on with her if she is in pain or hurting or anything and she can't tell me either so I just have to guess, and I really hate doing that, but we finally got a new appointment sit up for her in St.Louis for Tuesday the 23rd so I am really hoping we will be able to make this one, so until Friday. Thank You and God Bless.

Jan. 15, 2007

9:30 P.M. Well today marks our five months, just doesn't seem like it. Today we did not go to the doctors they called and canceled for today. So a few more weeks I guess then we will get her back in there. Stacey has been real good today, pretty cooperative she even helped me get her up this morning. She even had visitors today and she did real good. Well not much to say again tonight, its been a long day so until Wednesday. Thank You and God Bless.

Jan. 13, 2007

9:30 P.M. Well another week already gone, Stacey has been very agitated the last few days, it has really been hard to see go back into this stage again. I really hoping that we were moving on, but I guess there is still some cliches that she needs to work out, tonight was the first night that she went to sleep early, but she didn't go to sleep until 3 A.M. this morning so she was probably ready for tonight to get here. Well Monday will be our five months, it still seems like it has been longer it seems like years, but it hasn't. Not much to report tonight things have been the same as far as her being agitated, we was really hoping to make it to the Doctors but with the weather we will probably have to but it off, but I will write again Monday and let everyone know. Thank You and God Bless.

Jan. 10, 2007

11:30 P.M. I am really sorry this is late tonight it has been a long day. Stacey was really good yesterday, we gave her a bath last night, afterwards we blowdryed her hair, when I walked in the room with it she said DRYER and I said yes that's right blow dryer. Then we laid her down and she let me cut and file her nails and was really calm, she didn't even try to pull away or anything. But she didn't ever go to sleep until about 2 A.M. at the end she was getting really upset, but I finally got her to relax enough that she went to sleep. Today was mixed, I think it was from her being up late, tonight I thought we were going to have another night but she has finally gone to sleep. The school here in New Haven is going to start working with Stacey as far as speech and OT, some of them are teachers she has had before, and they are some of her favorite teachers, so I am hoping she remembers them, and still feels a bond like she did before. I am really excited about Monday when we take her to the Doctors in St. Louis I am really hoping they give us a good report on her. Well I guess that is all for tonight, I better get to bed she will be up early in the morning. Thank You and God Bless. Tonights picture is to remind us how far she has come, its slow but she is improving little bit every day.

Jan. 8, 2007

11:30 P.M. Well better news tonight Stacey has been back to her calm self the last few days, she has been getting her own cup to drink from, I mean we put it beside her, so she has been picking it up and drinking it on her own, and she has been wanting more attention like holding her hand, she let me clip and file her nails tonight without any resistance, and it seems as if she has been using less cuss words. I am really starting to get my hopes up that she may be moving into the next faze of the comma stage, she has even been taking her wheel chair strap off and trying to stand which her legs are not strong enough but she is trying. The chair strap scares me a little bit I am afraid that she will do it when we are not in the room and fall, but we have been trying to keep a close eye on her. We definitely will have our hands full when she does start standing, that kinda scares me to, but we have got this far with her not to much more to be surprised by, but I am sure she will make sure there is a few things. Tonight the picture is of her in the Miss Teen Missouri USA competition in Dec. of 2005 in Kansas City, Mo.

Jan, 6, 2007

8:30 P.M. To start off tonight, I would like for everyone to say prayers for the Mcintosh family they have lost there son on the Jan 4th for everyone that does not know them there daughter Caitlin is a great inspiration for Stacey, Caitlin helped Stacey with the 2005 Miss Teen Missouri USA competition. Also Mary(caitlin's mother) and Caitlin helped Stacey prepare for the 2006 Queen Competition for New Haven, the whole family has been a great inspiration for me and Stacey and I could never thank them enough for all they have done for us. Except that I can ask everyone that reads this to please say a prayer for the family because they can use it now to get them threw this time so they can be strong now and later. Stacey did good until this afternoon and she did a complete turn around on us, she is back to the biting and spitting and just fighting us on everything, not sure what brought it on but it's back, but we enjoyed the calmness while we had it. The picture tonight is Caitlin Mcintosh with Stacey guiding her how she always did so well. Caitlin was Miss Missouri USA 2004, Caitlin and her family are very beautiful people inside and out. Remember please the prayers for all. Thank You and God Bless.

Jan. 4. 2007

6:30 P.M. Well not much to say again tonight, Stacey is still some what in the calm stage that she has been in for the last few days, she was a little agitated again tonight but I think she was ready for bed. Oh Ray got her to stand last night she grabbed hold of him and before he could position himself like usual she stood up it wasn't but a second but she did it on her own which is a very good sign on her part, I think she may be trying to come back around to us and realizing that this is what she needs to do. At least I am hoping so. I will be running out of pictures soon so if anyone has any that they would like to have posted on here sent to me a kimmyjr39@yahoo.com and I will get them on until the 6th. God Bless and Thank You.

Jan. 2, 2007

7:00 P.M. Well another day gone, Stacey was still pretty good for me today, she even tried to help me put her pants on this morning. Stacey also ate really good today . Tonight she was a little cranky but we layed her down and she calmed right down. So thats all for this evening untill later, I may try and update every other day since there isn't to much change in her right now unless something new happens, so I will update on the 4th. Thank You and God Bless.

Jan. 1, 2007

2:30 P.M. Well another year here, I am glad to see it. Stacey tried to stay up with us last night but we finally had to lay her down at 11 p.m. But we had the radio on and I think she heard them celebrating on there, we got a woo-ho out of her and we came in to woo-ho with her. She shortly went to sleep after that. This morning she was more calmer than usual we even gave her a bath this morning and she even tried to help and let me wash her with hardly any words at all. She has been pretty well calm all day it's a new side to her, we were glad to see her like this today it made a big difference for us. I know she will still have her days, but maybe we are moving into another faze of the comma, at least I am hoping so. I hope everyone had a good time bringing in the New Year and hope all the best to everyone, until tomorrow. Thank You and God Bless.