April 30, 2007

7:30 A.M.

Well another long week, we are still having problems with Stacey's transportation, I am not really for sure what the problem with them is, but it is really getting old. They did not pick her up Friday night so I went up to go get her she didn't get home until 8 p.m. it was a long day but I don't think I can say I have ever seen her so happy to see me when I went to go pick her up, it was nice to see that I am still loved or missed or what ever it was. They are going to do some experimenting on her as far as giving her something to relax today, they are going to take cast impressions of her legs for braces for her legs and feet, they say she has alot of pulling different directions when she stands, but they said it is just from her not being on her feet for this long. But since they have had so much problems in the past of getting her to relax with the medicines having an opposite affect on her, so that is why they are going to try to see what they can find to relax her so it works Wednesday when they do the casting. But as far as today they say they are going to take advantage of the time, they were going to bring someone in to do her hair, get it cut and straighten and they said maybe some coloring also they was going to fix her up like she looked in all her pictures. They also are going to use Stacey's pictures that they take today for advertisement for Raken, I told them she would love that, I know before this accident she did everything to be noticed, and I know this would be right up her alley, even if she doesn't realize it now, I know later it will be a another great achievement for her. Last week was still a long road for Raken with Stacey, but Friday she started doing more for them in all she accomplishments she did 90% of everything they ask of her so I am hoping she is starting to open up. We go on the 9th for an overall view of what they think of her and maybe how long they will need to work with her. Still working on finding a dentist for her and a pedi pysho for her meds hopefully this week we will get more info. Well I guess that is it for now, Thank You to all who took time to come see Stacey this weekend, and also a big THANKS for everyone keeping Stacey in there prayers. Until the next update, God Bless. I am putting a picture of Stacey with her brothers I finally got everyone to stay home long enough for a picture.

April 22, 2007

4 P.M. Well another week here and gone and I am so glad this has just been a very busy week, I thought I was tired before but this week has taken alot more out of me than usual. Stacey started Monday at Ranken it was a very long process that day she was not very cooperative at all that day but when I got in on it she started doing more, but that was wrong I should have did more sitting back but after all this time it's kinda hard to leave someone else take over, it's kinda like take your child to there first day of kindergarten you have let them know everything a still try to do it all even tho they are there, so it took me some time to get use to it. Tuesday we went up for her right arm for the MRI they have found a foreign object in the arm they are not sure when we looked at the scans it looked like she had a hole threw the bone but I know it is what ever is in there that in front of the bone. The orthopedic doctor is suppose to call me next week to find out what we are going to do about it to see if it is worth going in and checking it out more. Wednesday we went back to Rehab. and it was another long day really no cooperation from Stacey what so ever, even tho I was still hiding behind things as they worked with her I couldn't help to watch. She seats and watches everyone, all the other kids and all the volunteers trying to work with her, she sits there like one of those kids that no one likes with that look on her face she makes me so sad to watch her, I gave in a couple of times and went over and sit with her but by that time she was highly upset with me, I know what she was thinking I can't believe you left me alone with these strange people, but I know she will eventually give in. Friday was another day the transportation bus did not come and get her so I took her up there again I did not want her to miss any time with them, this time I did set back and did not interfere with anything but it was hard, I think I paced those floors a million times Friday, and my legs let me know about it friday night. But I know it is just going to take time, I just hope she realizes this soon so she can start getting back on track, I mean actually spend the time learning instead of fighting them all the time. I will be going back up with her Monday to make sure she does good on riding on the bus instead of with me, and then it will be just me at home, but that's ok I have so much spring cleaning to catch up on I will be keeping myself busy I am still tring to convince myself of this. I would like to thank every one who brought old shirts by for Stacey, Brittney Gildehouse and Amanda Lansford she also brought some one piece swim suits by because they were to but Stacey in the pool Friday but she was not cooperating enough so they said maybe next week they will try. Plus I went to the garage sales this weekend and got some shirts so hopefully we are set for awhile. For everyone that is not sure what I'm talking about these last few weeks Stacey has started tearing her shirts up biting and just ripping them off, I'm not sure what this is all about but I was out of shirts for her, so we made a few phone calls and it wasn't long and everyone was there to bring shirts so again THANK YOU hopefully we won't be going threw this stage to much longer. But again Thank You all for prayers and support and just being there. Until next week God Bless.

April 14, 2007

3:30 Well we have hit our Eight Month mark it does not really seem that it has been that long, sometimes it does and other times it doesn't. Well we got our approval for Ranken Jordon they was really pleased to see her Wednesday when we took her up there even tho she was not very cooperative for them. But they comended me and Ray for her muscle tone that we was able to keep up on her, they said that makes it easier for them this way they can start right away on getting her on her feet sooner. They said usually when they get kids that have to be at home like Stacey they have to do a lot of work for toning them for walking. They were very positive on us and again gave us an A for all the work we have done with Stacey, also they commended New Haven School and Mrs. Moloney for all there time and effort that they gave also. It made me feel really good to here them say all they did about us, I was always so worried if I was doing things wrong and that it would hold her back when it was time for her to go back to rehab. but we did good so she will be able to move along faster. She is only going to go three days a week Monday, Wednesday, and Fridays from 8:30 to 4:00 p.m. until she gets more use to them and she gives them her trust. So we start Monday I will be taking her this week and make sure she makes the adjustments ok before I leave her on her own. We go Tuesday for the MRI on her arm so that should be another interesting day. But I am really pleased with Ranken they have all she needs even a swimming pool were they will be working with her on her rehab. I am pleased and know that they will give her every chance that she needs to get back on her feet and to get back into society, I'm excited. Well I always thought that Stacey would be the one to break something on me but I was wrong it was her wheel chair, Wednesday when we was getting ready to take her to her eval at Ranken I loaded her wheel chair in the back of the truck when I went to shut the top of the wheel chair down I slammed it down on my finger, it made for a long day because when I was trying to transport her and show them how she does things she would grab that finger, but I finally went to the doctors yesterday and they took x-rays and they told me I broke the tip, they want me to go to an orthopedic but there is nothing they can do besides charge me 120 dollars and but my metal pieces on it and say it will heal in time. But lets but it like this I won't be making another mistake like that again any time soon. Thursday we also received her walking stand we have been playing with since we got it we leave her in it 10 to 15 minutes a couple times a day and she has been doing good as far as taking steps in it but she starts getting mad at us very quickly, they said her chair and the rest should be here in a couple more weeks, but this week has been another blessing for us, I just hope all keeps going well so until next week. Thank You and God Bless.

April 7, 2007

11:30 p.m. Well I am hoping we finally got all the kinks out of the blog, I am hoping we don't have any more problems. Well good news we got it set up for rehab. she goes starting Wednesday for and evaluation and then they will call me and let me know when she actually can start and how long they think and how long she will be going for. Also got approval for her transportation back and forth but I need to check and make sure they will take her by herself and that they will not need me to go along, hopefully we can get it worked out. We went today to see the pedi phsycologist, but we went up there and found out she is not a pedi phys. she is just a therapist so we have to find another one we need to get her meds straightened out but she said maybe Raken Jordon would know more about it so we will see. Stacey had alot of visitors today bringing her easter baskets and candy it was a good day for her think it seems she does not want to go to sleep tonight but I think it is from the chocolate she had tonight. Well I guess that is all for tonight I will try and update maybe Wednesday night after we go to Raken to update on the day. Thank You and God Bless.

April 3, 2007

9:45 P.M. Sorry for the last posting I am not for sure why it went all the way under another blog but it did and then I could not figure how it happened or how to correct it I just left the message so I hope everyone was able to see or find it OK. Well we finally found us a new Rehab. it is Raken Jordon in Maryland Heights they are suppose to get back with me as far as when we can get started. But this place is great it has all the equipment that she needs plus more, and they are set up to take care of her every need. They even said depending were she is that they would even start bringing a teacher in to start helping with getting her prepared for going back to school, which that will be awhile before she will be able to go back to school. I am just so excited but yet I am a little gun shy, I am scared that she will start going and something will happen were she goes back into her whole that she was in before she started talking and they will stop working with her and just sent her home and tell us we have to wait again. This whole thing has been the biggest nightmare of my whole life, not only do you have to watch your child go threw all of this of rebuilding there life all over and never be able to see the child you knew before and see another person form, it's confusing at times, will she smile again the smile that everyone loved her so much for, will she maybe have a few chartists that you loved come back, how different will it really be. Don't get me wrong yes I am happy my daughter survived, I thank God everyday that she is still here with us and I would not trade her for anything and I will love her no matter what happens or how it will turn out, it is just hard to go threw all of this, hardly getting any help from the company's who promise to be there and you have to take care of everyday business yourself and take care of your child also. But the thing that gets me is if you screwed up at all they would not even blink an eye about coming and taking them away from you calling you a bad parent, because you have all of this available to you. But we will always have hurdles to jump and they can throw whatever they want at me, I won't give up until she is up on her feet and back attending school to finish here education and she is walking down the asile for her graduation that will be my day even if it is three years down the road. We are still working with transportation for Stacey they are saying now that she is not approved for transportation services but I have made a few calls so hopefully it will go threw if not we will figure something out but she will get up there, this is unfortunately another one of those hurdles that needs to be jumped and we will get over it. Stacey had a few visitors last night Dustin and Spike from Union it took a few times but she finally got there names down, they had a good visit Stacey was already getting used to them and butting her feet on there laps so they would rub her feet, which they said she always did before, so I am not sure if she had any memories of them but it didn't take long for her to make her self comfortable while they were here. Well I guess that is it for tonight I will try and update soon to let everyone know how things are going as far and rehab. and other things so will update soon. Thank You and God Bless.