July 22, 2007

9:00 P.M.

This has been a long week, Stacey has just been a terror this week, with being very short and very rude this week, but yet at the same time she had her good minutes. Stacey is going threw a stage were she is asking the same questions over and over this week and it seemed as the week progressed she has been getting worse, especially with her eating, I will just get finished feeding her and she is still hungry or telling me I have not fed her yet, which we have been going threw this stage for awhile but the thing is now she is doing what ever it takes to get into the kitchen or trying to crawl out of bed at night or even get into anything that looks like food or she thinks is food, it is almost like having a two year old around again I can not leave her alone for a minute without her getting into things, and I have been putting things up and she still is finding out ways to get into everything, and yes I spoke to soon when I said I couldn't believe she was going to sleep early every night now she is starting to do the opposite for me, which has really been worrying me. I am getting to the point again were I am not sleeping because every noise I hear I think it is her, that's all I need is for her to be falling out of bed, and she has been doing so good I just don't understand, how she starts making improvements and then she starts backsliding it is so very, I don't know I can't even explain how it makes me feel anymore, I myself have gone threw every stage there is with her as far as emotionally, and I am not sure what is left, don't get me wrong I do worry very much every day it just seems like I keep doing this all over and over in my head and I can not get a grip on what going on anymore. I know she is still making improvements and I have tried to look this stage up and I was not able to find it so I am not sure what is going on. We have a doctors app. the 24th with Doctor Morris in Union hopefully we can get some answers then. I am also going to have him call her orthopedic doctor for her arm we still never heard back from him about the foreign object they found in her right arm when they took the MRI, I had asked the doctor from Ranken Jordon to call and he said that they would investigate it more, no answers! Then when she went to Mount Vernon I also but a request in for him to give them a call and again no answer, so hopefully I can get another orthopedic doctor or this one will do something because the spot on her arm is starting to get bigger, what I mean by that is she had a opening on her arm that they did not sew up very well it is also the same spot that shows up on the MRI, so now this spot is starting to swell and bulge out some, I am not sure if it is from the object in her arm or what but I know it is getting bigger and it is concerning me very much, so we will see what happens. Also I have noticed Stacey's vision is not been very good she is starting to hold the page up close to her face to see what she is reading and this is another problem that has just popped up so we will talk to the doctor about getting a vision test set up for her to see what is going on. But we are still having alot of her friends from Washington come down at least twice a week to see her, I do think she is starting to get use to them this last visit she gave them all hugs goodbye, so that was something new for her and I hope they keep coming I do think it does wonders for her. The picture tonight is of friends who stopped by last week from here in New Haven. So I guess this is all for tonight hopefully I will have more answers for what I don't know now, so until next week Thank You All and God Bless.